Thursday, March 21, 2013

Thank you, Nella




I first met Nella in an elevator at the Adams Mark Hotel in Indianapolis for a Disability Ministry Conference in  April of 2004.  Dedicated to serving people with disabilities, encouraging pastors to change their congregations, and bringing hope to the life's of parents, she was always smiling.  As the Executive Director for Friendship Ministries, she was busy changing the world through mentoring and special needs curriculum in several languages and across multiple continents.

As I transitioned from being just a parent with a child with DS to someone actively involved in disability ministry, our paths crossed more often.  We laughed often about the Washington DC conference  in 2005 when her budget hotel complex had a SWAT team visit in the dead of night. She encouraged me to submit a presentation for the AAIDD Conference in Atlanta in 2007.  Again in Washington DC in 2008, four of us - her in sandals -decided to walk from the convention hotel to the Washington National Cathedral via the National Zoo - not realizing the subway map wasn't to scale.

When Friendship Ministries asked me to join their board of directors, I did so in part because I wanted to share in her vision.  I will miss that warm smile, the welcoming hug, and that hint of a Dutch Canadian accent.  Over the years, she introduced me to the sculpture gardens, pointed out the changes to Calvin since when I attended in 1990, and gave a mini lecture on Gerald Ford.   Our last phone conversation was about a month ago, when I was stranded in the Grand Rapids Airport due to snow.  Until next time, she said,  when it won't be snowing.

Until next time.

Saturday, February 16, 2013

Amplifying Our Witness

As my daughter prepares for middle school, I've been waiting for the childrens ministry discussions to make it into youth ministry hot topics.  Thanks to Ben Conner, here is an important first work.  It's on my next book to review list, but it looks good!  Eerdmans' snapshot is below.



DESCRIPTION
Nearly twenty percent of adolescents have developmental disabilities, yet far too often they are marginalized within churches. Amplifying Our Witness challenges congregations to adopt a new, practice-centered approach to congregational ministry — one that includes and amplifies the witness of adolescents with developmental disabilities. Replete with stories taken from Benjamin Conner's own extensive experience with befriending and discipling adolescents with developmental disabilities, Amplifying Our Witness
  • Shows how churches exclude the mentally disabled in various structural and even theological ways
  • Stresses the intrinsic value of kids with developmental disabilities
  • Reconceptualizes evangelism to adolescents with developmental disabilities, emphasizing hospitality and friendship.

Thursday, February 07, 2013

EMMA WOLVERTON: THE GIRL WHOSE NAME WAS CRUSHED


Bob Perske has been a tireless advocate for people with disabilities.  This is a recent article he penned.  Thanks to Rev. Bill Gaventa from the Boggs Center in New Jersey for sending this to me.

EMMA WOLVERTON: THE GIRL WHOSE NAME WAS CRUSHED
By Robert Perske

TO MY SELF-ADVOCATE FRIENDS:
            I know how hard you worked at getting others to see people with disabilities as PERSONS FIRST!  What I learned from you makes me want to tell you about a woman named Emma Wolverton.  Her good name was being smashed down like a tractor driving over a flower. 

            Emma's complete story can now be found in a new book entitled GOOD BLOOD, BAD BLOOD: Science, Nature, and the Myth of the Kallikaks (AAIDD, 2012).  It was written by David Smith and Michael Weymeyer, two researchers who worked like detectives on the case since 1976.  Here are a few of the many things they discovered about Emma.

*     *     *     *     *
            Emma Wolverton lived in an earlier time when there were no self-advocates.  As a tiny girl she stayed in an "almshouse," a home for poor people.  When she became 8 years old, she was taken to live in an institution called The Training School for Feeble-Minded Boys and Girls in Vineland, New Jersey.  After her arrival, a psychologist named Dr. Henry Goddard tested her and claimed that she was a "feeble-minded girl."  She lived in the institution for 81 years.  She died with the whole world never knowing her real name.
 
            Goddard hired field workers to study Emma's relatives who lived before her.  In doing so, they found that Emma's great-great-grandfather was a Revolutionary War soldier who "dallied" with a feeble-minded girl in a tavern -- leading to the birth of a "feeble-minded son."

            The workers reported that 480 relatives were found after the tavern affair -- and 143 were "feeble-minded."  Then the workers traced the lineage of the soldier after he "straightened up and married a respectable girl of good family."  This time the workers found 469 direct descendants and all of them were "normal."

            Then Goddard wrote a book called THE KALLIKAK FAMILY: A Study in The Heredity of Feeble-Mindedness (Macmillan, 1912)In his book, he used the fake name "Kallikak" to hide the real names of all of the relatives in the two sets of families.  It was derived from two Greek words:  Kallos (beauty) and Kakos (bad).  The first word was used mostly to emphasize the beauty in the soldier's family after he shaped up.  Then Emma became the "poster child" for all the bad in the descendants of the illegitimate, feeble-minded infant.

            After his book came out, Goddard saw to it that Emma was always to be addressed as Deborah Kallikak -- and never be called Emma Wolverton again. 

           Smith and Weymeyer found numerous negative statements by leaders in high places: President Theodore Roosevelt saw Emma's kind as leading us all to "Race Suicide" . . . U.S. Supreme Court Justice Oliver Wendell Holmes called people like her "a sap on the strength" of the country . . . Many states voted laws that ordered the sterilization of thousands of persons with disabilities . . . Every state began building institutions to house the so-called "bad" Kallikaks.  After all, Goddard got many to believe that if we didn't stop them, they would outbreed us.

            Now, for the first time that I know of, Smith and Weymeyer had the guts to print Emma Wolverton's real name and to describe all the good things they found in her existence.

            Smith and Weymeyer uncovered a number of reports showing Emma to be most caring and talented:  She was a handsome woman at 25 . . . She excelled in embroidery, woodcraft and basketry . . . she played the cornet beautifully . . . took star roles in plays and pageants . . . she was well-trained in fine laundry work and dining room service . . . she used a power sewing machine and made clothes . . . she became a valued helper with children living in "the cottages" . . . she worked as a nurse's aide in the institution's hospital . . . and still later, she filled a nanny-housemaid role in the superintendent's home . . . Still later, she wrote warm and newsy letters to the children after they grew up and left the superintendent's home.

            It is also interesting to know that as a mature woman she fell in love with a maintenance worker.  She developed a system for crawling out her window to be with him.  When they were discovered, the man was fired and regulations were tightened on Emma (Smith, David: Minds Made Feeble. Pro-Ed 1985).

            For me, the turning point in the story came when Smith and Weyermeyer discovered a scholarly 860-page book on the Wolvertons by geneologists David MacDonald and Nancy McAdams (The Wolverton Family 1693-1850 and Beyond, Penobsot Press, 2001).  Their findings did not mesh with the ones created by Goddard and his field workers.

            I write the same conclusion that readers will find in Smith's and Weymeyer's book.  It is about respecting the good names of persons with disabilities.  I could never improve on what they wrote.  So I have decided to print it here:
            When we strip people of their names, we strip them of their dignity, their value, their selfhood.  It allows us to talk about "them" in anonymity, referring to our perjoritive name for them or the number we've tattooed on them, as if they were not people, not human.  We can refer to them as morons, criminal imbeciles, or degenerates as if they were not really sentient beings.  We can lock them away for the rest of their lives or sterilize them without their knowledge.  We -- we humans -- can march them into gas chambers by telling them that they are going to take a shower.
            Her name was Emma, not Deborah.
            Emma Wolverton.
            We at least owe her the respect of calling her by her name.

Saturday, January 19, 2013

El Autismo y Tu Iglesia / Autism and Your Church

JUST RELEASED - NOW AVAILABLE!



After serving many years in Southern California and listening to my wife speak to me in Spanish, I knew there was a large under served population of Spanish speaking Christians who wanted to minister to people with disabilities.

I've been fortunate to have been part of Friendship Ministries the past few years and know first hand their commitment to making resources available in Africa, Central America, as well as the US and other English speaking countries.

Barb Newman's groundbreaking Friendship imprint publication - Autism and Your Church -- has been translated into Spanish !  The English version has been a great resource for hundreds of churches the last few years -- this will help many in our Spanish speaking churches as well.  I first met Barb when she spoke at a NACSPED conference in Southern California years ago.  This book continues her tradition of helping churches integrate persons with disabilities.

For my Spanish pastor friends -- you may find disability resources like this already translated available at the Friendship / Amistad bookstore.  For my English speaking friends -- check out the English site to order a copy.  If you are in the Assemblies of God, GPH carries some Friendship materials as well as some of Barb's books -- or you may order them through Faith Alive Publishing.

Friday, January 11, 2013

Attention Korean Churches in Southern California

Do you pastor in a Korean church?  Do you have friends that do?  An upcoming conference in Anaheim will be dedicated to disability ministry and is being presented in Korean and translated into English.  These conference brings several of the leading experts in disability ministry into one place for one day.  If you would like to learn more, please download these flyers:

English version
Korean version

or visit www.disabilityconference.org

Monday, December 10, 2012

Welcoming People with Disabilities - Conferences Summer 2013

In 2005, very few Bible colleges or seminaries offered any courses in disability ministry or theology.  Since then, many more cross discipline training opportunities have arisen.  These range from Jeff McNair's MA in Christian Disability Studies (CalBaptist - Riverside), to JAF (Joni and Friends) courses to occasional seminars and lecture series at colleges around the country.

If you would like to reach a substantial population of unchurched people, but just do not know how, there are some great resources coming up for the summer of 2013.

This summer, there will be four multi day conferences to choose from

  • Toronto, Canada; (July 15-19)
  • Lille, France (June 27-29)
  • Auckland, New Zeeland (July 1-3)
  • Shawnee, Kansas (June 10-15)
While each of them will be good, the one in Kansas will have a collaborative approach with sessions taught by faculty of both Central Baptist Theological Seminary and the Developmental Disability Center of the University of Missouri - Kansas City.

For more information, please download this flyer.





Friday, December 07, 2012

Accessibility Icon Project


Perceptions Matter --

With nearly 85% of the disabled population unchurched, what your ministry says before a person even gets in the door is just as important as the ministries inside the building.

The Accessible Icon Project has redesigned the typical lifeless logo into one is which is active and inviting.  Several major churches and Christian colleges have taken the initiative to adopt this as part of their missional approach.  The next time you stencil your parking lot, consider this.  It's just another little thing to intentionally make Christ accessible to everyone.

http://www.accessibleicon.org/index.html




Wednesday, November 28, 2012

UN Convention on Rights of Persons with Disability

The disability world has been abuzz the last few days as the long awaited UN Convention on Rights of Persons with Disability makes it to the full floor vote of the US Senate this week.

Nearly two decades after the ADA was passed in the US, this land mark convention establishes a common ground for disability rights across the globe.  Over 100 countries have signed and ratified it.  The US is one of the few that has not yet.

There are obviously several reasons for this.  The first is that a large group in the US have never cared for anything to do with the UN.  That's all-right.  They should continue to voice their opinion.  In fact, both American parties had concerns over the potential American sovereignty issues, so ensured that stipulations were put into place that essentially stripped this convention, like many other UN conventions, of any legal authority in the US.  In essence, it is truly a non-binding policy statement. The second is that many are concerned that the  language used in it will promote an anti-Christian and anti-parent agenda.

The first reason is strictly political.  Nations are valid forms of government, yet have artificially constructed boundaries.  Our democratic republic allows us as a people to exercise our voice in our government.

The second reason is strictly religious.  Our moral compass serves to inform our actions.  Many Christians want to retain their God given right and authority as parental stewards of their children.

It is when these two reasons intersect and become blurred that confusion reigns.  As a conservative, evangelical pastor active in the disability community I understand and sympathize with many of my good friends' opinions but remain puzzled and concerned.

1) All people are created in the image of God.  The UN convention inherently seeks to offer the status to all people.  It is the church's responsibility to awaken that image of God into Christian service, not the United Nations.

2) The convention's strictest language about abortion (a red button issue for many evangelicals like me) actually places limitations on it.  This is not necessarily a pro-abortion or anti-abortion policy statement. It is, however, a pro-life statement.  In fact Article 10 is quoted below:

Article 10 - Right to life

States Parties reaffirm that every human being has the inherent right to life and shall take all necessary measures to ensure its effective enjoyment by persons with disabilities on an equal basis with others.


3) At no point does it limit what families or churches can do.  As a governmental policy, it does suggest what the state could do if others abdicated this area -- but leaves that up to local governmental control.  If anything, it's probably shameful to those of us in the church who have abandoned this responsibility.

4) Have you seen many persons with disabilities in church recently?  What about at the local Christian school? A quick survey of these religious organizations leads many to conclude that Christianity does not value persons with disabilities.  Two decades ago, ACSI actively lobbied against the passage of ADA. Now even more good Christian groups are lining up to oppose this policy.  I am concerned that our evangelical  well intended actions may be having drastic long term consequences.

But since I am a special educator, disability advocate, parent of a child with Down Syndrome, an evangelical pastor, but not a politician, I will not be contacting my representatives either way.  Instead, I would like to issue this challenge:

Take the UN statement.  Replace any governmental language with church language.  Bring it to your board of elders, your bishop, your presbytery.  Affirm the rights of any person with a disability to worship from the pew, preach from the pulpit, serve communion, be approved as an elder, and function in any of the gifts that the Holy Spirit liberally offers.

If  you are honestly ready to do that, than do NOT vote for this resolution.

[The opinion reflected in this article is solely that of Rev. Marvin J. Miller and is not representative of any of the official positions or opinions of any of the  ministries in which he serves.]

Full Text of UN Convention

http://templatelab.com/convention-on-the-rights-of-persons-with-disabilities/

-----------------------------------------------------------------------------------------------
UPDATED 4/19/18 to reflect updated url link for Full Text of UN Convention.






Tuesday, November 27, 2012

The Bible, Disability, and the Church


BOOK REVIEW

For many years, practical ministry to people with disabilities has continued despite the lack of theologians reflecting on what impact disability has on the church at large.  A brief respite has appeared with the writings of Amos Yong in The Bible, Disability, and the Church: A New Vision of the People of God.  Yong, influenced by growing up in an Assembly of God pastor’s home as the older sibling of a brother with Down Syndrome, has penned five articles which hope to reimagine the church and its relationship alongside people with disabilities. 

This 176 page book, which includes a chapter study guide, is reflective of Yong’s engaging personal speaking style and is targeted to the layperson and local church pastor.  Yong, the J. Rodman Williams Professor of Theology at Regent University School of Divinity, revisits the same themes found in his earlier systematic work entitled Theology and Down Syndrome (2008), yet does so in a manner more accessible for most readers.  While a few of the million dollar theological words remain, they are appropriately defined in context and would not hinder the reader from comprehension.

Yong defines his presuppositions early on: people with disabilities are created in the image of God, they are people first, and they are not evil blemishes to be eliminated or fixed into normal.  He posits that most people read their normal experiences into the Biblical narrative, resulting in the social marginalization of people with disabilities; it is only by recognizing the inherent prejudices that the Biblical reader understands how these passages actually indicate God has fully welcomed people with disabilities into full social inclusion and joint ministry.  Yong continues that it is the person (and church structures) without disabilities that must be saved from practicing discrimination.

Yong moves out of his comfort zone of systematic theology into the realm of biblical theology to make his point.  His line of argument extends from the First Testament with Job, Jacob and Mephibosheth into the New Testament with Zacheus, the Ethiopian Eunuch and Paul.  By asserting that people with disabilities are central to the redemptive history gospel accounts, he concludes that they are also fully part of the post-Pentecost church age and must be a vital functioning part of the body of Christ in order for the church to accomplish its mission.

Yong completes his work with a re-examination of resurrection life.  Many normate understandings presume that resurrected beings have no direct links to the disabled bodies of this age and therefore should be fixed on this side of eternity.  Yong rejects this perspective by looking at the resurrected, yet nail scarred body of Christ.  He boldly claims since people marked with disabilities do have a place in God’s new creation even more so should there be a place for them in the church today.

Yong’s positions are a welcome refrain to those within the disability family.  They also cause appropriate discomfort for those persons outside (or even very close) to that community, yet not currently disabled themselves.  Yong has delicately balanced two evangelical strands of tradition – a yearning for liberation and a yearning for wholeness.  His brief comments on the concept of the church as one body with many members reveal excellent points, but a full scale discussion of how the gifts are fully appropriated without discrimination within the body has not yet been fully developed.  It is this resulting tension which reveals much more work can be done. 

This book is a must read for all pastors and those that minister alongside people with disabilities.  It lays an excellent Biblical foundation on why disability ministry should exist within the local church.  With the enclosed study questions, it can easily be adapted into a small group Bible study for those in your church who wish to catch the vision of a disabled-inclusive congregation.

The Bible, Disability, and the Church: A New Vision of thePeople of God.  Amos Yong (Grand Rapids, MI: William B. Eerdmans Publishing Company. 2011). 176 pp. Paperback, $20.00, ISBN: 978-0-8028-6608-0.